Have your say on Australian Government’s PBS reimbursement for Orencia® (abatacept) for psoriatic arthritis

Dear CreakyJoints Australia Community:

Dear Members,

It’s time for members of the CreakyJoints Australia community to have your say on what the reimbursement of the medicine Orencia, also known as abatacept, may mean for you if you are diagnosed with psoriatic arthritis. (For more information about psoriatic arthritis, click HERE.)

The Pharmaceutical Benefits Advisory Committee (PBAC), which advises the Federal Government on which medicines to subsidise on the Pharmaceutical Benefits Scheme (PBS), has requested public and personal comments from Australians who are living with (or treat) psoriatic arthritis – or their carers. We’re notifying you about how you can participate, and we’re urging you to consider taking less than 10 minutes to help, whether you have psoriatic arthritis, or know someone who does. The deadline is 7 February, and details about how to participate are below.

An important part of the reimbursement process involves the Government and the PBAC hearing from doctors, patients, their families and other medical and patient groups to incorporate everyone’s perspective into the decision to cover, or include a particular type of medication or treatment, or not.

As part of this review, you are invited to provide your comments, which may help the Government’s advisors to understand:

– Your experience with treating/living with psoriatic arthritis.
– How you think this medicine will affect the lives of patients and their families and carers.

To support our submission we need your valuable feedback, and encourage you to participate in the process. It’s very easy, will take just a few minutes of your time, and is a really important part of the process.

To have your own say, and join our CreakyJoints Australia chorus of voices, visit the PBAC website and follow the simple directions:

Reminder, the deadline is 7 February 2018.

Step 1: Click on this link to go to the PBAC submission page.
Step 2: Fill out the form on that link, which will correspond to the below questions.
Step 3: Email us notifying us that you have submitted a comment.
Step 4: Send this email to any friends or family who may be interested in helping to raise our voice as arthritis patients!

Medicine to which this submission relates: Abatacept
Date of PBAC meeting: 7-9 March 2018
Submitted by: Your name
Email: Your email
Phone number: Your phone
Street address: Your address
Suburb: Your suburb
State: Your state
Post code: Your post code

Declaration of interest: Please include any declarations you wish to make regarding the PBAC submission upon which you are commenting. If you have no declarations to make, please respond “nil”:

Consumer input:
Please indicate whether you are a person with this medical condition, a friend or family member, a prescriber, a representative of an organisation or other interested person.

What comments would you like the PBAC to take into account when it considers this submission?

This is where you post your personal experience. Note that this is not a “test” and all submissions will be reviewed by the committee and are appreciated for their personal and private nature. Be honest, direct, polite and respectful.

Consider highlighting the importance of having as many tools in the toolbox as possible, and that it’s important for Australians to have access to as many new and innovative therapies as possible.

You may also share the information about your doctor (name), how long you have been living with arthritis, the types of medicines you’ve tried in the past, and how important it is to you that we have more options available to us in the future.

How did you learn about this submission process?

CreakyJoints Australia monitored the submission process and notified the community about this comment period. CreakyJoints Australia is part of the non-profit Global Healthy Living Foundation PTY LTD, based in Australia and headquartered in New York, U.S.A.

Thank you for your time and input!

Naomi Creek
Patient Co-ordinator