More immunocompromised Australians now have free access to the shingles vaccine. This includes people on advanced treatments for autoimmune conditions. Could you be eligible?
If you have an autoimmune rheumatic disease, you have an increased risk of severe symptoms from respiratory infections. We share expert tips on managing your risks and staying healthy.
By CreakyStaff
Were you affected by the abatacept (Orencia®) shortage this year? If so, we have great news. The supply situation in Australia has improved and you may be able to return to your previous treatment regime.
Australians with moderate to severe lupus now have affordable access to a targeted treatment via the PBS for the first time.
Are you interested in the role health consumers play in planning and conducting health and medical research in Australia? Here’s your chance to have your say about how we can help shape the research that affects us.
By CreakyStaff
Do you use abatacept (Orencia®) to treat your inflammatory arthritis? Australia has a shortage of both the ClickJect (autoinjector) and pre-filled syringe subcutaneous formulations of abatacept. Here’s what you need to do.
Are you concerned about how women’s pain is handled across our health system? Allow us to share your thoughts and experiences in a new Inquiry into Women’s Pain.
By CreakyStaff
Australians with severe systemic lupus erythematosus may soon have a new treatment option. Here’s how you can help us get this medication subsidised through the Pharmaceutical Benefits Scheme.
The first Australian Rheumatoid Arthritis Clinical Care Standard aims to foster better health outcomes and an improved quality of care for people with RA across the country.
By CreakyStaff
Our guide to recognising osteoporosis risks, exploring treatment options and optimising dietary choices for better bone health.
By CreakyStaff
Exciting news for Australians with chronic plaque psoriasis. Two breakthrough treatments have been added to the PBS, bringing fresh possibilities for those with this challenging condition.
By CreakyStaff
Did you know children get arthritis, too? A new juvenile arthritis awareness campaign and a new research registry aim to improve the lives of young Australians with arthritis.
We're thrilled to support the global #AdvantageHers campaign by UCB, including women with lived experience of chronic inflammatory disease. Let's empower women to pursue their dreams and share their stories while seeking diagnosis and treatment.
By CreakyStaff
Were you transitioned to another medicine during the tocilizumab (Actemra®) shortage? Now that it is available again, you can speak with your rheumatologist about your ongoing treatment options.
By CreakyStaff
MyAS is a new website that helps people with axial spondyloarthritis/ankylosing spondylitis access tailored information about their condition.
A new Painaustralia report shows, since opioid regulations were tightened, 56.2 per cent of people with chronic pain have had their medication cut.
By CreakyStaff
Learn how you can help Arthritis Australia’s #1in7withArthritis 2022 election campaign to lobby federal parliamentarians for more support for people with arthritis.
By CreakyStaff
Do you use Orencia to treat your inflammatory arthritis? Have you been affected by the current supply shortage? Here are the options available to you.
By CreakyStaff
Have you experienced delays in receiving scripts and biologic medication in the last two years? How has this affected you? Have your say in a new national survey.
By CreakyStaff
Limited supply of tocilizumab (Actemra®) is now on the way for some Australians with inflammatory conditions such as rheumatoid arthritis.
By CreakyStaff
In the Global Healthy Living Foundation’s latest COVID-19 Patient Support Program poll, the majority of respondents are not satisfied with their ability to socialise with others.
By CreakyStaff
Watch Michael Kuluva’s Tumbler and Tipsy 2022 Collection online event and see accessible fashion showcased by models with chronic conditions.
Guselkumab (Tremfya®) is a new treatment option for Australians with psoriatic arthritis – an autoimmune form of arthritis closely connected with psoriasis.
By CreakyStaff
How can Australians with autoimmune arthritis access a COVID-19 vaccine? Learn more about your eligibility and the evidence you will need to provide.
Tennis great, Caroline Wozniacki, is the face of the Advantage Hers campaign which helps women with chronic inflammation build their own health game plan.
Electronic prescription services are currently being rolled out in Australia. How do they work? How secure are they? Will they replace paper prescriptions?
What will the current COVID-19 vaccine candidates mean for Australians with autoimmune conditions? Can we take them? When will we get them?
Ixekizumab (Taltz®) is a new treatment option for Australians with ankylosing spondylitis - a chronic form of arthritis that affects the spine and pelvis.
By CreakyStaff
CreakyJoints Australia launched the inaugural edition of A Patient’s Guide to Living with Axial Spondyloarthritis in Australia as a free download from their website today to coincide with World Arthritis Day.
By CreakyStaff
Due to COVID-19 restrictions and concerns, patients are delaying seeking the care they need to manage chronic conditions or to address new symptoms.
By CreakyStaff
Michael Kuluva has been using his fashion line Tumbler & Tipsy to raise awareness for arthritis and chronic illness for years — and he knew he had to find a COVID-friendly way to keep it going.
Australians are using more telehealth services due to COVID-19 but many are not maintaining their regular doctor visits for existing chronic conditions.
Australians hospitalised with severe COVID-19 symptoms can now access the newly approved drug remdesivir (Veklury®) to help speed their recovery time.
By CreakyStaff
This commonly prescribed steroid might be lifesaving for critically ill coronavirus patients.
Do you use opioid medication to manage your arthritis pain? If so, you need to know about the recent changes to Australian opioid access regulations.
By CreakyStaff
Do you use a biologic medication for your inflammatory arthritis? Do you know about biosimilars? Discover the basics as part of Biosimilar Awareness Week.
By CreakyStaff
Arthritis Australia, has launched MyRA - a new rheumatoid arthritis website designed to help people become active participants in their journey with the disease.
Axial spondyloarthritis (including ankylosing spondylitis) is a common form of arthritis, yet most Australians haven’t heard of it. CreakyJoints Australia would like to help change that.
By CreakyStaff
Upadacitinib (Rinvoq®) is a new treatment option now available for adults with moderate to severe RA who can't tolerate methotrexate or don't respond sufficiently to it.
Are you worried about how you can access and manage your prescription medications if you are stuck at home due to the coronavirus outbreak?
There have been concerns about the safety and effectiveness of glucosamine supplements for osteoarthritis. A new statement by experts clarifies the facts.
By CreakyStaff
When you have rheumatoid arthritis, it’s hard to know how to “live well” with it. Wouldn’t it be great if there was a handbook to follow? There is now.
By CreakyStaff
Do you know how to manage your arthritis or related chronic health issues during emergency situations? These resources could save your life.
CreakyJoints Australia is supporting National Diabetes Week by highlighting the connections between diabetes and arthritis. There are more than you’d think.
The new National Strategic Action Plan for Pain Management shows musculoskeletal conditions, such as arthritis, are a leading cause of pain in Australia.
On 3 June 2019, the Broadening the Evidence report, commissioned by Bristol-Myers Squibb, was launched in Sydney before a group of patient advocates and other interested parties. This author was proud to attend as a representative of CreakyJoints Australia.
With the Federal election just days away, CreakyJoints Australia are supporting Arthritis Australia’s campaign to ask everyone to Speak Up for Arthritis and tell our politicians how they can best serve the needs of the four million Australians with arthritis.
Tofacitinib (Xeljanx®) is now available on the Pharmaceutical Benefits Scheme (PBS) for those diagnosed with psoriatic arthritis.
Recently members of the CreakyJoints Australia (CJA) team had the privilege of attending the APLAR-ARA congress in Brisbane where we met with many industry professionals and attended several informative sessions.
On 1 March, 2019, ixekizumab (Taltz®), was added to the Pharmaceutical Benefits Scheme (PBS) to give adults with severe psoriatic arthritis more treatment options. Previously, Australian adults had been able to access the medication, but at a cost of around...
By CreakyStaff
CreakyJoints Australia has joined forces with healthcare advocates around the world to draw awareness to Rare Disease Day®.
The CreakyJoints Australia Patient Council is a team of inspiring individuals from states and territories across Australia and New Zealand living with various forms of arthritis and drawn together by a common mission. That mission is to empower Australians living...
By CreakyStaff
Article updated 29 January 2019 Are you tired of sharing your medical history each time you see a new healthcare provider? Have you ever arrived at a doctor’s appointment to discover that your test results hadn’t come through? Do you...
We joined supporters and volunteers of Musculoskeletal Australia (MSK) at Victoria’s Government House this week as they celebrated their 50th Birthday.
Did you know that of the 3.5 million Australians living with arthritis, almost 960,000 also live with a mental health condition?
In May, CreakyJoints Australia’s national coordinator, Naomi Creek, attended a 2018/19 Health Budget briefing in Canberra with Federal Health Minister Greg Hunt.
In May, CreakyJoints Australia was delighted to once again attend the Australian Rheumatology Association Annual Scientific Meeting, this year held in Melbourne.
Trexject® (a range of pre-filled methotrexate syringes) will be listed under the Pharmaceutical Benefits Scheme (PBS) from 1 April 2018 for those with severe rheumatoid arthritis or psoriasis.
According to the Victorian Model of Care for Osteoarthritis of the Hip and Knee, the prevalence of OA in Victoria alone will increase by 42% by 2030.
In August 2017, the Council of Australian Governments (COAG) approved Australia’s new National Digital Health Strategy (the Strategy) entitled, ‘Safe, seamless and secure: evolving health and care to meet the needs of modern Australia‘.
The vaccine-style treatment, known as DEN-181, uses immunotherapy to treat the cause of this debilitating autoimmune disease.
Recently, the Australian Healthcare and Hospitals Association produced the report, Rheumatology nurses: adding value to arthritis care which was commissioned by Arthritis Australia. The aim of the report was to assess the current and potential role, scope of activities, and...
MOVE muscle bone and joint health recently released the report 'Everybody Move: Improving outcomes in musculoskeletal health' which outlines how changes in approaches to treatment and care can save our healthcare system hundreds of millions of dollars.
Pharmaceutical company, Abbvie, recently announced the launch of a new symptom screener questionnaire, Dont Turn Your Back on Pain, designed to help those with unresolved chronic back pain discover the possible cause of their discomfort.
By CreakyStaff
It’s always a busy but enjoyable time attending Rheumatology Annual Scientific meetings and this year’s NZRA & ARA meeting in Auckland was no exception. CreakyJoints Australia met up with many rheumatologists, researchers and arthritis related organisations and attended a number of...
By CreakyStaff
CreakyJoints Australia was delighted to have a chat with Rebecca Grainger, while we were in Auckland attending the NZRA & ARA Joint Annual Scientific Meeting. Rebecca is a Rheumatologist for Hutt Valley District Health Board (DHB) and senior lecturer at the University of Otago in Wellington
The collaboration will focus on research around the early detection and prevention of rheumatoid arthritis – a debilitating auto-immune condition that many of us know all too well!
By CreakyStaff
There’s a very good chance that your rheumatologist recently returned from Auckland, New Zealand, where he or she attended the joint New Zealand Rheumatology Association (NZRA) and Australian Rheumatology Association (ARA) annual conference.
Support groups are great places to meet others with similar health conditions or life challenges. They provide the opportunity to ask the questions you don’t really get to talk to your doctor about – especially the questions about how to live with your condition day in, day out.
By now, most of you will be aware that we have a new Federal Minister for Health and Sport in Australia. Greg Hunt was appointed to the position after the resignation of Sussan Ley on 18 January 2017 following an expenses scandal.
In the week before Christmas, a decision was made by the Therapeutic Goods Administration (TGA) that will have far-reaching effects for many thousands of Australians dealing with pain.
By CreakyStaff
CreakyJoints Australia recently dropped in to visit Rheumatologist, Dr Irwin Lim, an avid Twitter user and blogger at his Chatswood Rheumatology Clinic, one of two BJC Health centres in Sydney, Australia.
I have been looking forward to contributing to this site for some time and I have so many ideas for articles that I can’t wait to share with you as part of the CJA writing team. A subject that fascinates...
By CreakyStaff
CreakyJoints Australia is our first step in widening our community beyond U.S. borders.
By CreakyStaff
CreakyJoints Australia has begun advocating on the urgent issue of biologic medicine substitution, currently being considered by the Australian government with the potential to impact countless auto-immune arthritis patients and other related diseases.
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